keith
New Member
Posts: 1
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Post by keith on Dec 13, 2020 4:12:58 GMT -7
Hi there. I had an amputation about 10 years ago. I seem to be suffering with extreme Nerve pain in my residual limb. It woke me up last night at around 2am, the pain drives into my brain, it really hurts. It stopped me sleeping and eased off at about 10am this morning. I don't know what to do. I am on Gabapentin, which doesn't seem to help. Does anyone know of anything I can get or use to ease the pain. I really need help with this if possible.
many thanks Keith
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Post by leftyeric on Dec 22, 2020 10:00:08 GMT -7
The stay-up-all-night-squirming thing, been there, done that! If it is the sort of thing that happens only once a few times a year, on average, the easiest/safest thing to do might be to just tough it out on those rare occasions. If it's more often, so that is is starting to screw up your life, well, ... does your state allow medical marijuana? You can buy some "gummy edibles", get some of the kind that is mostly CBD, the some of the other kind that is like 1/2 THC, 1/2 CBD. Start with like 1/4 square of each kind, not a whole one! Then tinker, see what works. If you can make it work with just the CBD, that's probably better. if you take it like an hour before you go to sleep, you don't have to worry about the psychoactive effects messing with your regular day. Just as you might start to feel hazy, you're going to sleep anyway. If the pain does still wake you up in the middle of the night, it will feel much less intense and you'll go back to sleep. Probably better if you only take it on nights when you can kind of sense phantom pain is going to be rough. A large majority Americans currently live in states with legal MMJ, but there are a few holdouts -- mostly Texas, and states in the Southeast. This is a pity because let's face it, Gabapentin doesn't do much, and opioids are crazy dangerous -- they ruin people's lives. Hopefully those states will come around pretty soon. There are also some jobs where you can get fired if you test positive for THC, so be aware of that. Good luck! (Just for background -- I'm not a druggie-type. I don't like feeling high. I work a job that requires me to be seriously sharp. For me, two hours of sleep because of phantom pain -- that means not seriously sharp!)
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Post by mary53 on Feb 13, 2021 18:25:48 GMT -7
My surgen “tied” off my nerves. I use gabbapenton too. Plus lyrics. Plus cymbals. They act on the nerves differently but are very similar drugs. I still have the phantom sensations. I have to get a stump revision in two weeks and will get on a trial drg stimulater. Those are things that have helped me.
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